Monthly Archives: September 2012

No, it’s not enough. It won’t be until there’s funding for cures.

Over the past few weeks, my Facebook and Twitter pages have been filled with posts, photos, articles, and stats related to childhood cancer. Yes, this is something I’m passionate about. When I say the stories of Isabella Santos and Ronan … Continue reading

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Childhood cancer doesn’t give a shit about politics.

For those of you who have never heard the name Lane Goodwin, he’s a 13-year-old boy from Kentucky who has bravely been fighting stage IV alveolar rhabdomyosarcoma. A “Thumbs Up for Lane” social media campaign has spread around the country, … Continue reading

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Justin Bieber loses his “wife” to childhood cancer…

I just read on Twitter the heartbreaking news that Avalanna Routh died today. She was 6. Avalanna had AT/RT (Atypical Teratoid/Rhabdoid Tumor), a rare brain cancer that is typically diagnosed in children under the age of 2. Another child lost … Continue reading

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The Truth 365 Campaign

So over the past couple of weeks as I’ve learned more and more about childhood cancer, I’ve stumbled upon many organizations–most named in honor of children with one form or another of childhood cancer–and each time I saw one, I … Continue reading

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Define “rare”…

I’ve read many things about childhood cancer, and, in particular, neuroblastoma. Although ALL childhood cancers are underfunded, I’ve often focused on neuroblastoma for two reasons. First, it’s what killed my friend’s daughter, Isabella Santos. And second, it’s not as rare … Continue reading

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The Ultimate Fighters…

For several months, I’ve been following the Facebook posts of the mom of a nine-year-old girl named Bella who, at age 4, was diagnosed with alveolar rhabdomyosarcoma. She’s been fighting ever since. I also just found out about a 13-year-old … Continue reading

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Of course it’s depressing! That’s the whole point!

First, let me say that if there were any way for me to be in Charlotte, NC today, I would be there. Today is the 5th annual 5K race for kids cancer, sponsored by the Isabella Santos Foundation. This is … Continue reading

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