Tag Archives: neuroblastoma

An absolutely disgusting disgrace…

One of the many children I follow on Facebook, Super Sammy–who’s bravely fighting neuroblastoma (https://www.facebook.com/SamuelJohnsonFoundation)–posted a disgusting letter written by Andrew Becker, Director of Media Relations at the American Cancer Society. In it, he essentially bashes the people trying to … Continue reading

Posted in Uncategorized | Tagged , , , , , , , , | Leave a comment

Three more…

Nicholas Pedone, age 7. Stage 3 neuroblastoma. Thomas Sullivan, age 6. Medulloblastoma. Silas Edenfield, age 4. Hepatoblastoma. Three beautiful children. All three lost their lives today at the hands of the beast that is childhood cancer. Please pray for their … Continue reading

Posted in Uncategorized | Tagged , , , , , , | Leave a comment

Remembering Isabella…

Today, March 9, Isabella Santos would have celebrated her 8th birthday. It should be a day of princesses and frilly skirts and cool boots and American Girl and dancing and singing and all the things Ib loved. Instead, her parents … Continue reading

Posted in Uncategorized | Tagged , , , , | Leave a comment

A new year, a new push for awareness and cures…

The new year brings so many things, both positive and negative. Sadly, a new year won’t change the fact that since New Year’s Day, about 35 families have learned that their child has cancer. Or that about 235 children have … Continue reading

Posted in Uncategorized | Tagged , , , , , , , , , | 1 Comment

In memory of Isabella Santos, neuroblastoma warrior…

Little kids make a big difference. The children at Village Pines School raised $2,415 in the Alex’s Lemonade Stand’s Change Childhood Cancer Fundraiser…

Posted in Uncategorized | Tagged , , , , | 1 Comment

Thankful for the giving hearts of children and their parents…

I’ve posted before about the Alex’s Lemonade Stand Foundation’s Change Childhood Cancer fundraiser that I’m doing at my daughters’ school. When I started the fundraiser in mid-October, I was modest in setting the goal. I figured each kid (there are … Continue reading

Posted in Uncategorized | Tagged , , , , | 1 Comment

Childhood cancer changes your perspective on everything…

On June 24, 2012, Stuart Santos received a beautiful birthday gift from his daughter, Isabella. She bought him an entry into the ING New York City marathon to run for Fred’s Team, a fundraising program that brings much-needed money to Memorial … Continue reading

Posted in Uncategorized | Tagged , , , , , , , | 4 Comments

The Inherent Innocence and Generosity of Children.

So after 6 weeks of talking about childhood cancer and wearing shirts and ribbons to promote awareness of childhood cancer, I decided that it was time to start doing something to raise money for childhood cancer. I learned via Facebook … Continue reading

Posted in Uncategorized | Tagged , , , , | Leave a comment

The Miami Herald Highlights the Nightmare that is Neuroblastoma.

For the past month, I’ve been trying to do my part to raise awareness of childhood cancers. I’ve blogged about it. Facebooked about it. Tweeted about it. I’ve worn my gold ribbon lapel and answered many questions about it. I’ve … Continue reading

Posted in Uncategorized | Tagged , , , , , , , , , , , , , , | 2 Comments

Death is nothing if not consistent.

The past few days, I’ve been mourning the loss of my beloved Nana, who was blessed to have 95 long years on this earth. She was the anchor of our family and her loss is profound. Especially for my mom. … Continue reading

Posted in Uncategorized | Tagged , , , | Leave a comment